NIA IMPACT Collaboratory

Understanding cultural norms is essential to achieving results in development interventions and preventing interventions from causing unintended negative consequences. However, capturing norms within everyday contexts in ways that can be monitored and evaluated can be expensive and time consuming and is not always feasible. We tested a novel method, the cultural consensus analysis (CCA), in the context of monitoring and evaluating a United States Agency for International Development (USAID) justice project in the West Bank, Palestine. We conducted 392 survey interviews with men and women, using 60 true or false questions in the knowledge domains of women's empowerment and gender-based violence (GBV), and tested three gender propositions using CCA. We found no singular cultural understanding of women's empowerment and GBV across West Bank Palestinians (proposition 1). Distinctive cultural models for women and other subgroups (e.g., those living in villages, women who identified as discriminated against within Palestinian society) exist, although there were no shared cultural models among men of any subgroup (proposition 2). Program assumptions regarding structural barriers to women's empowerment conformed to the women's cultural models (proposition 3). To our knowledge, this is the first application of CCA as an approach for describing gender norms in international development programming. CCA was able to distinguish subtle cultural patterns, including between population subgroups, and to identify how those are associated with specific risks, such as GBV. We conclude that CCA is a potentially useful approach for development practice, to ground-truth program assumptions and, potentially, to track program impacts.

Embedded pragmatic clinical trials (ePCTs) of nondrug interventions for Alzheimer's disease and Alzheimer's disease-related dementias (AD/ADRD) are conducted in real-world clinical settings and designed to generate an evidence base to inform clinical and policy decisions about care for this vulnerable population. The ePCTs exist within a complex ecosystem of relationships between researchers, payors, policymakers, healthcare systems, direct care staff, advocacy groups, families, caregivers, and people living with dementia (PLWD). Because the rapid increase of the number of Americans with AD/ADRD outpaces curative treatments, there is an urgent need to mobilize the power of these relationships to improve dementia care and address a mounting public health crisis. Stakeholder engagement in ePCTs is essential to generate research questions, establish the relevancy of trials to the intended end users, and understand the factors that influence dissemination and implementation in real-world clinical settings. The process of including stakeholders in ePCTs for dementia is similar to stakeholder engagement in ePCTs for other diseases and conditions; however, the unique nature of embedded research, prevalence of caregiver and provider burden, and the progressive worsening of cognitive impairment in PLWD must be approached with additional strategies. This article presents key considerations of stakeholder engagement for ePCTs in AD/ADRD and main activities of the stakeholder engagement team in the National Institute on Aging IMPACT Collaboratory to move the field forward. J Am Geriatr Soc 68:S62-S67, 2020.

Sustainability implementation efforts, relevant to all Sustainable Development Goals (SDG), can succeed or fail based on how the program activities effectively align with local community norms. Conflict arises when implementers incorrectly assume the ways in which local communities and other stakeholders share their world views. A novel approach was applied to identify conflicts between stakeholder norms through the example of wildlife conservation. This case is based on 62 systematically collected interviews involving law enforcement staff (wildlife police officers [WPOs]) and local community members in four of Zambia's Game Management Areas. Cultural consensus analysis (CCA) was used to extract and compare cultural models across groups. Discordant cultural norms were identified for resource protection, which reflected frailty of collaborative strategies. Concordant norms were relevant to shared understandings of the disproportionate burdens to GMA-based communities from conservation and some potential benefits of collaboration. This case shows exemplar application of CCA to capture and compare stakeholder norms associated with livelihoods and conservation, allowing better program design that reduces conflict and builds on shared values to better support SDGs, especially SDG15 (Life on Land).