Addressing unmet needs in pregnancy and family planning of people living with rare and low-prevalence diseases: results of the “ERN transversal working group on pregnancy and family planning” survey

Fulvio, G.; Marinello, D.; Zucchi, D.; Aguilera, Silvia; Benachi, Alexandra; Biller, Ruth; Blanco, Ignacio; Boiteux, Marie-Claude; Borgards, Petra; L. Brandi, M.; Costafreda, Ester; Fonseca, J.; Fredi, M.; Guimarães, V.; Iotova, V.; Lecointe-Artzner, Estelle; Rita Lopes, Ana; Louisse, Simone; Nalli, C.; Olesińska, Marzena; Onali, Michela; Papenthin, Wiebke; Power, B.; Röhl, Claas; Rousset-Jablonski, Christine; Sturz, Dominique; Tincani, A.; JM der van Vleuten, Carine; Vieira, Ana; Dan, Do; Backer, J.; de Die Smulders, Christina; Dufke, A.; Frank, C.; Limongelli, Giuseppe; Lorenz, Birgit; Kilpiäinen, Elisa; J. Pascau, M.; Raidt, J.; Ray-Coquard, I.; Rimmer, Rachel; Schneider, Holm; J der Van Pal, Helena; Yap, Tet; Talarico, R.; Tani, Chiara; Mosca, Marta

doi:10.1186/s12978-025-02136-5

Public

Addressing unmet needs in pregnancy and family planning of people living with rare and low-prevalence diseases: results of the “ERN transversal working group on pregnancy and family planning” survey

Shared by NobleBlocks on Nov 25, 2025 • 12:00 AM UTC

Authors:

G. Fulvio

D. Marinello

D. Zucchi

Abstract

Pregnancy and family planning for individuals living with rare and low prevalence diseases present unique medical, psychological, and logistical challenges. The European Reference Networks (ERNs) were established to address healthcare disparities and enhance patient care for rare diseases across Eur...

Subject

Medicine

Finding related papers...

Discussions

(0)

No comments yet

Be the first to share your thoughts!