How to routinely collect data on patient-reported outcome and experience measures in renal registries in Europe: an expert consensus meeting

Breckenridge, K.; L. Bekker, H.; Gibbons, E.; N. van der Veer, Sabine; Abbott, D.; Briançon, S.; Cullen, R.; Garneata, L.; Jager, K.; Lønning, K.; Metcalfe, W.; Morton, R.; Murtagh, F.; G. Prutz, Karl; Robertson, S.; Rychlík, I.; Schon, Steffan; Sharp, L.; Speyer, É.; Tentori, F.; Caskey, F.

doi:10.1093/ndt/gfv209

Public

How to routinely collect data on patient-reported outcome and experience measures in renal registries in Europe: an expert consensus meeting

Published in Nephrology Dialysis Transplantation • May 16, 2015

Authors:

K. Breckenridge

H. L. Bekker

E. Gibbons

Abstract

Despite the potential for patient-reported outcome measures (PROMs) and experience measures (PREMs) to enhance understanding of patient experiences and outcomes they have not, to date, been widely incorporated into renal registry datasets. This report summarizes the main points learned from an ERA-E...

Subject

Medicine

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